{"product_id":"how-to-tell-when-we-will-die-on-pain-disability-and-doom","title":"How to Tell When We Will Die: On Pain, Disability, and Doom","description":"“A book for the moment and for the ages. It’s questing, pissed, propulsive, funny, generous, pervy, and original—full of love and pain in all their entwined glory.” —Maggie Nelson, author of The Argonauts\n\nWINNER OF THE AMBER HOLLIBAUGH AWARD FOR LGBTQ+ SOCIAL JUSTICE WRITING\n\nThe long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.\n\nIn the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.\n\nHow to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.\n\nWith the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.\u003cbr\u003eASIN: 163893116X\u003cbr\u003eVSKU: PKV.163893116X.G\u003cbr\u003eCondition: Good\u003cbr\u003eAuthor\/Artist:Hedva, Johanna\u003cbr\u003eBinding: Hardcover\u003cbr\u003e\u003cb\u003eNote:\u003c\/b\u003e Any images shown are stock photographs and product may differ from what is shown.  \u003cbr\u003e\u003cb\u003eCondition Notes\u003c\/b\u003e: A well-loved companion. Corners and cover might show a little wear, and you could find some notes or highlights. The dust jacket might be MIA, it might have been a library book and extras aren't guaranteed—but the story's all there!  \u003cbr\u003e","brand":"Aspen Book Company","offers":[{"title":"Default Title","offer_id":52279339057439,"sku":"PKV.163893116X.G","price":13.52,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0894\/0470\/3007\/files\/163893116X-0.jpg?v=1774804229","url":"https:\/\/www.aspenbookco.com\/products\/how-to-tell-when-we-will-die-on-pain-disability-and-doom","provider":"Aspen Book Company","version":"1.0","type":"link"}